What's It Really Like?
In this series of podcasts, we explore the lives of children who are life-limited or have complex medical needs. We wish for vulnerable children and their families to feel heard. We hope that it will have a global reach. It is where people will chat with me, Sharon Thompson. The purpose is to comfort those who need it and to educate and connect our community with medical professionals and organisations who need to hear What’s It Really Like to Care for An Extra Special Child.
Episodes
11 episodes
Episode 10 Karen for All Ireland Institute for Hospice & Palliative Care
In this last episode of the current series, Karen Charnley, Director of AIIHPC talks about their work supporting collaboration within the palliative care community. Elements to listen out for are; the information website called The Pallia...
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18:10
Episode 9 Anne-Marie for LauraLynn
Anne-Marie Carroll Director of Nursing for LauraLynn (Ireland's only Children's Hospice) explains how they provide specialist hospice, palliative, and supportive care services to meet the needs of children with life-limiting conditions and thei...
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32:05
Episode 8 Carmel for The Jack & Jill Foundation
An in-depth chat with the CEO of Jack & Jill Foundation, Carmel Doyle. Jack & Jill is a nationwide Irish charity providing in-home nursing care and respite support for children up to the age of 6 with severe to profound neurodevel...
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27:41
Episode 7 Lizzie from Together For Short Lives
We hear how Together For Short Lives supports children with complex medical needs in the UK. Thank you, Lizzie Chambers.
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Season 1
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Episode 7
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32:03
Episode 6 with Nurse Irene
Listen to Episode 6 to learn what it is really like to be an Irish home-care nurse for a child with complex medical needs. Thank you to Irene for sharing her passion for this special work. Also thanks to;Amanda Evans for ...
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31:49
Episode 5 Maggie & Alex
In this episode, we hear from Maggie who tells us What It's Really Like for her son Alex who has several life-limiting conditions and is part of a large, lucky family.
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Season 1
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Episode 5
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31:10
Episode 4 Niamh & Eabha
This week Niamh Shine talks about caring for Eabha (and her three siblings) in a busy, happy family.
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38:56
Episode 3 Sharon Dempsey for Owen
*Warning *This Episode includes discussions about death in childhood. Writer, Sharon Dempsey, talks about her son, Owen, who was diagnosed with an ependymoma brain tumour at the age of two. Owen had neurosurgery, chemotherapy, and radioth...
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Season 1
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Episode 3
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34:28