What's It Really Like?
In this series of podcasts, we explore the lives of children who are life-limited or have complex medical needs. We wish for vulnerable children and their families to feel heard. We hope that it will have a global reach. It is where people will chat with me, Sharon Thompson. The purpose is to comfort those who need it and to educate and connect our community with medical professionals and organisations who need to hear What’s It Really Like to Care for An Extra Special Child.
What's It Really Like?
Episode 1 with Aisling & Jack
We hear from Aisling who is the sole, full-time carer for her sixteen-year-old son, Jack, in their home in Ireland. Jack has Down syndrome, a very rare autoinflammatory disease & other complex needs. Aisling shares her thoughts, fears, and hopes for their family. The Covid pandemic is foremost in her mind, and she explains what it is really like to care for Jack. On World Down Syndrome Day it is magical that we have this podcast to share.
With thanks to;
Aisling McNifficent our guest
Amanda Evans for the graphics
Pixaby Coma-Media for the music